--- title: I Can’t Even Get a Denial description: A patient from PA-09 shares how Medicare coverage rules block access to home infusions—preventing even a denial and leaving no path to appeal. image: https://www.patientsrising.org/hubfs/PA-09_Kristian%20Quote.png --- [![Patients Rising](https://www.patientsrising.org/hs-fs/hubfs/raw_assets/public/PatientsRising-u4m/templates/images/patients_rising_logo.png?width=120&height=900&name=patients_rising_logo.png "Patients Rising")](https://www.patientsrising.org/) - Policy Center - - [Policy Framework ](https://www.patientsrising.org/policy) - [Affordability ](https://www.patientsrising.org/policy/affordability) - [Accountability ](https://www.patientsrising.org/policy/accountability) - [Innovation ](https://www.patientsrising.org/policy/innovation) - [Federal Healthcare Policy ](https://www.patientsrising.org/policy/federal) - [Learning Center ](https://www.patientlearningcenter.org/) - - [LEAD Education ](https://www.patientlearningcenter.org/lead) - [Our Community ](https://www.patientsrising.org/our-community) - [Patient Senate ](https://www.patientsrising.org/patient-senate) - Insights - - [All Posts ](https://www.patientsrising.org/advocacy-updates) - [PR Magazine ](https://www.patientsrising.org/pr-magazine) - [Patient Stories ](https://www.patientsrising.org/advocacy-updates/tag/patient-stories) - [Medical Bankruptcy in America ](https://www.patientsrising.org/medical-bankruptcy-america) - [State of the Patient Podcast ](https://www.patientsrising.org/state-of-the-patient-podcast) - Get Involved - - [Share Your Story ](https://www.patientsrising.org/storyshare) - [Become an Advocate ](https://www.patientsrising.org/become-an-advocate) - [Join the Patient Senate ](https://www.patientsrising.org/patient-senate) - [Join Our Community ](https://www.patientsrising.org/community) - [Events ](https://www.patientsrising.org/events) - - [State of the Patient Summit & Rise Awards ](https://www.patientsrising.org/events/summit-and-rise-awards) - [Advocacy Fly-ins ](https://www.patientsrising.org/patients-rising-fly-in) - [Virtual Lunch n' Learns ](https://www.patientsrising.org/events) - Virtual Town Halls - About Us - - [Our Mission ](https://www.patientsrising.org/about-patients-rising) - [Our Principles ](https://www.patientsrising.org/patients-rising-principles) - [Our Team ](https://www.patientsrising.org/team) - [Our Board of Directors ](https://www.patientsrising.org/board) - [Our Advisory Councils ](https://www.patientsrising.org/advisory-council) - [Partners and Coalitions ](https://www.patientsrising.org/partners) - Corporate Partnerships - [Funding & Financial Reports ](https://www.patientsrising.org/financial-transparency) [Donate ](https://patientsrising.org/?form=support-patientsrising) This is a search field with an auto-suggest feature attached. - There are no suggestions because the search field is empty. [Patient Stories](https://www.patientsrising.org/advocacy-updates/tag/patient-stories) [Medicare](https://www.patientsrising.org/advocacy-updates/tag/medicare) [Pennsylvania](https://www.patientsrising.org/advocacy-updates/tag/pennsylvania) [Home Infusion](https://www.patientsrising.org/advocacy-updates/tag/home-infusion) Apr 08, 2026 I Can’t Even Get a Denial Written by [Patient Advocate](https://www.patientsrising.org/advocacy-updates/author/patient-advocate) SHARE Link copied!   I Can’t Even Get a Denial 2:15   I live with complex health issues that require ongoing care. But what has been hardest is not just my condition, but simply trying to actually access basic treatment. One of the biggest challenges I’ve faced is getting something as simple as saline infusions at home. This is not a luxury for me. It is something my body genuinely needs to function. But under Medicare, saline infusions are considered an excluded benefit in my situation. Because of that, infusion pharmacies will not even submit the request to insurance. That means I cannot get a denial. And without a denial, I cannot file an appeal. I’ve asked providers, case managers, and pharmacies to submit it anyway just so I would have something to work with. Every time, the answer has been no. I have been blocked at every step before I can even begin the process. At the same time, my condition makes it extremely difficult to leave my home. Transportation is not just inconvenient, it is often not possible. What should be routine outpatient care becomes completely out of reach. So I am left in a situation where: - I have a clear medical need - My providers understand that need - But there is no realistic path to access care This is the part people don’t always see. It’s not just about whether a treatment exists. It’s about whether you can actually get it. Right now, the system does not just make it difficult for me to access. It makes it impossible. --- ****Editor’s Note:******* ***Patients Rising shares patient stories to raise awareness and reduce isolation among patients and caregivers navigating serious health conditions. Stories are submitted by patients and may be edited for clarity and flow while preserving the author’s voice. The experiences described are personal accounts and should not be considered medical advice. --- ### **Turn Your Experience Into Impact** No family should have to fight alone for answers, care, or support. By sharing your story and joining Patients Rising, you can help bring attention to the policies that affect patients every day—and be part of the movement to fix them. 👉 [Share your story](https://www.patientsrising.org/share-your-story) 👉 [Join our community](https://www.patientsrising.org/community) 👉 [Learn about our LEAD advocacy education](https://www.patientsrising.org/advocacy-course) **Together, we can change what comes next.** Tags: [Patient Stories](https://www.patientsrising.org/advocacy-updates/tag/patient-stories) [Medicare](https://www.patientsrising.org/advocacy-updates/tag/medicare) [Pennsylvania](https://www.patientsrising.org/advocacy-updates/tag/pennsylvania) [Home Infusion](https://www.patientsrising.org/advocacy-updates/tag/home-infusion) ## Related Posts [View All News ](https://www.patientsrising.org/advocacy-updates) [Patient Stories](https://www.patientsrising.org/advocacy-updates/tag/patient-stories) Jul 08, 2026 [A Daughter's Mission: Fighting for Her Mom's Medically Necessary Care](https://www.patientsrising.org/advocacy-updates/a-daughters-mission) [Read More ](https://www.patientsrising.org/advocacy-updates/a-daughters-mission) [Patient Stories](https://www.patientsrising.org/advocacy-updates/tag/patient-stories) Apr 18, 2026 [Multiple Myeloma Story: 3 Years Misdiagnosed Before Diagnosis](https://www.patientsrising.org/advocacy-updates/multiple-myeloma-misdiagnosis-paula-story) [Read More ](https://www.patientsrising.org/advocacy-updates/multiple-myeloma-misdiagnosis-paula-story) [Access to Care](https://www.patientsrising.org/advocacy-updates/tag/access-to-care) Apr 17, 2026 [The GUARD Model: What It Means for Patients](https://www.patientsrising.org/advocacy-updates/guard-model-patient-impact) [Read More ](https://www.patientsrising.org/advocacy-updates/guard-model-patient-impact) ## Get Updates In Your Inbox Sign up for updates about our patient education, support and advocacy programs and initiatives. [![Patients Rising](https://www.patientsrising.org/hubfs/raw_assets/public/PatientsRising-u4m/templates/images/footer-logo.svg "Patients Rising")](https://patientsrising.org) Empowering every patient in America to advocate for reforms placing them, alongside their doctors, in control of their healthcare choices. Headquarters: 700 12th Street, NW Suite 700 Washington, D.C. 20005 (202) 750-1186 [info@patientsrising.org](mailto:info@patientsrising.org) - [![facebook](https://www.patientsrising.org/hubfs/PatientsRising-u4m/images/facebook.svg) ](https://www.facebook.com/PatientsRising/) - [![Twitter](https://www.patientsrising.org/hubfs/PatientsRising-u4m/images/twitter.svg) ](https://x.com/patientsrising?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor) - [![instagram](https://www.patientsrising.org/hubfs/PatientsRising-u4m/images/instagram.svg) ](https://www.instagram.com/patientsrising/?hl=en) - Policy & Insights - [Policy Center](https://www.patientsrising.org/policy) - [Patient Stories](https://www.patientsrising.org/patients-rising-stories) - [The Latest](https://www.patientsrising.org/advocacy-updates) - About Patients Rising - [Our Mission](https://www.patientsrising.org/about-patients-rising) - [Our Principles](https://www.patientsrising.org/patients-rising-principles) - [Our Team](https://www.patientsrising.org/team) - [Partners & Coalitions](https://www.patientsrising.org/partners) - Get Involved - [Become an Advocate](https://www.patientsrising.org/become-an-advocate) - [Join Our Community](https://www.patientsrising.org/community) - [Share Your Story](https://www.patientsrising.org/storyshare) - [Events](https://www.patientsrising.org/events) - [Contact Us](https://www.patientsrising.org/contact-us) #### Get Updates In Your Inbox Sign up for updates about our patient education, support and advocacy programs and initiatives. © 2026 Patients Rising. All rights reserved. - [Contact Us](https://www.patientsrising.org/contact-us) - [Privacy Policy](https://www.patientsrising.org/privacy-policy)   - [Terms of Use](https://www.patientsrising.org/patients-rising-terms-of-use) ```json { "@context" : "https://schema.org", "@type" : "BlogPosting", "author" : { "@type" : "Person", "name" : "Patient Advocate", "url" : "https://www.patientsrising.org/advocacy-updates/author/patient-advocate" }, "dateModified" : "2026-04-10T02:48:58.370Z", "datePublished" : "2026-04-08T12:30:00.000Z", "headline" : "I Can’t Even Get a Denial", "image" : [ "https://www.patientsrising.org/hubfs/PA-09_Kristian%20Quote.png" ], "mainEntityOfPage" : { "@id" : "https://www.patientsrising.org/advocacy-updates/blocked-before-care-begins-medicare-coverage", "@type" : "WebPage" }, "publisher" : { "@type" : "Organization", "logo" : { "@type" : "ImageObject", "url" : "https://www.patientsrising.org/hubfs/Patients%20Rising%20Logo%20RGB%20(1).jpg" }, "name" : "Patients Rising" } } ```