Building a better healthcare system for all.
We are the leading grassroots patient advocacy organization seeking comprehensive policy solutions that puts the patient experience at the forefront of addressing America’s biggest healthcare access challenges
Empowering every patient in America to advocate for reforms placing them, alongside their doctors, in control of their healthcare choices.
PROGRAM HIGHLIGHTS
We The Patients Fly-in
Learn about We The Patients Week in DC.
Take Action!
Visit our Advocacy Action Center to review opportunities to make a difference.
Explore Opportunities to Advocate
Webinar
Elevating Patient Voices in Ultra Rare Disease: Navigating ICER Reviews
State-by-State Actions & Resources
Learn about specific actions you can take to impact policy decisions and find critical advocacy resources.
Patient Stories
We want to hear what you’ve experienced as a patient. Take a few moments to share your experience and motivations to advocate for patients.
When our elected officials hear from patients, they listen and take action.
Advocacy Masterclass 2024 Applications are Open
The Advocacy Masterclass, part of our Patient Learning Center, is designed to train patients, caregivers, and citizens in the art of healthcare advocacy.
Latest Updates
Medicare Physician Fee Schedule Reform: Addressing Doctor Shortages and Ensuring Access to Care
To Address the National Doctor Shortage and Expand Access to Care, Patient Advocacy Groups Call for Medicare Physician Fee Schedule (MPFS) Reform WASHINGTON – Today, over 30 patient advocacy groups joined Patients Rising in calling for federal lawmakers...
Supporting a Streamlined Pathway for Medicare Patients to Access Innovative Medical Technologies
This letter supports H.R. 1691, creating a streamlined pathway for Medicare patients to access innovative medical technologies. It highlights the significant positive impact of medical technologies, such as helping shrink hospital stays, reduce deaths from certain...
Protect Rare Disease Treatments and Medication Affordability
Protecting the Future of Rare Pediatric Disease Treatments and Ensuring Medication Affordability To protect rare disease treatments and ensure medication affordability, Congress must pass the Creating Hope Reauthorization Act of 2024 (S. 4583) and the Medication...
From Our Patient Advocates
As a patient, I expect to be able to access the health care services I need.
“Medicare refuses to cover my tube feeds. Since my doctor is unable to show proof that I will need my feeding tube forever, they don’t deem it as necessary. Reality is, without my feeding tube I wouldn’t be here today. I need it to survive. The rules and regulations are a one-size-fits-all model for humans who are complex and unique.”
As a patient, health care decisions will remain between me and my doctor.
“It is essential to find a doctor or team who not only listens to and believes you but also respects you, it’s all too easy to get overlooked, ending up with your insurance company dictating your care. I owe my parents everything for taking me to a psychiatrist when I was six or seven and unable to function due to my intrusive thoughts and obsessive tendencies. I can’t imagine how much more painful my childhood might have been otherwise. Access to the right kind of medical care can be not only the difference between life and death, it can also be the difference between misery and a life worth living.”