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Sami, Patient Advocate
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Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast, featuring honest and helpful discussion about issues impacting those with chronic illness
Patients Rising Now is a national nonprofit organization dedicated to advocating for the rights of patients with chronic and life-threatening illnesses. We work at community, state and federal levels to activate patients in support of reforms and legislation aimed at advancing patient access to and affordability of healthcare.
The mission of the Patient Access & Affordability Project is to provide patient-powered pathways to help legislators, regulators, payers, and employers better understand the patient experience as they make critical coverage decisions for patients with rare and chronic diseases.
Voices of Value
Attitudes about Socialization, Clinical Trials, Medication Use & Treatments in People of Color with Inflammatory Bowel Disease
Editorial Note: this article is longer than our usual content. It is copied verbatim from
New framework for the evaluation of rare disease therapies prioritizes patient experiences, feedback, and needs WASHINGTON
Visit our bookstore hosted on Bookshop.org We have curated a list of helpful books on a range of topics of interest to patients and caregivers. We are always adding to the list.
Tell Your Story
Patients Rising Stories is a mapped national-network where you advocate for your rights and the rights of others that are impacted by chronic illness. Claim your place on the map. Your brave stories and insights will be heard by patients, advocates, legislators, policy makers and media.
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