FOR PATIENTS. BY PATIENTS.

Turning Patient Experience into Policy Impact

Patients Rising equips patients with the tools and leadership skills to bring their experiences directly to the decision-makers who shape healthcare.

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WHERE POLICY MEETS REAL LIFE

Policy Should Reflect Patient Reality

Healthcare decisions are too often made without input from the patients who bear the consequences: coverage delays, surprise bills, administrative roadblocks, and financial hardship. When patient experiences are sidelined, policy misses the mark and problems persist.

Patients Rising equips patients and caregivers with the training and tools to bring those realities directly to policymakers—turning personal challenges into effective advocacy that drives pro-patient reforms in patient access, affordability, and patient choice.

Visit the Policy Center

PATIENT ACTION CENTER

Take Action on Our Latest Campaigns

Healthcare policy decisions are happening now at the federal and state levels.
These campaigns give patients structured, informed ways to engage.

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PUBLIC COMMENTS OPEN

340B Rebate Model

HRSA is reviewing changes to how hospital drug discounts are tracked. Share your experience and explain why transparency and patient benefit must come first.

Submit by: April 20th

Submit a Comment

PROTECT YOUR ACCESS

Medicare Drug Price Negotiation

CMS is setting drug prices, and patient input is key evidence they consider. Register for listening sessions by March 6th. Your real-world experience becomes part of the record, helping prevent barriers to the treatments you need.

Register to Speak with CMS by: March 6th

Learn More Now

Make 340B Work for Patients in the States

States are advancing policies that affect hospital drug discounts and patient access. Engage locally to ensure accountability and patient-first implementation.

See State Campaigns

PREPARED ENGAGEMENT

From Understanding to Action

We move beyond awareness. Through issue briefings, leadership training, and testimony preparation, Patients Rising prepares patients to participate thoughtfully and effectively in healthcare decision-making.

Explore Advocacy Training

“Becoming a patient advocate, sharing my story, and connecting with others has shown me that even in life’s darkest moments, something beautiful can grow.”

– Amy

Patient Advocate

“Every story matters, and if sharing mine helps even one person feel seen, supported, or empowered to speak up, that’s why I keep going.”

– Valarie

Patient Advocate

Structured Tools for Patient Leadership

Patients Rising provides structured reporting, comment guides, policy briefs, and engagement frameworks that help patients participate confidently in healthcare policy discussions.

Become an Advocate

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Connect & Support

A Network of Informed Patient Leaders

Our private community connects patients and caregivers who want to engage healthcare policy with focus and discipline. Members exchange insight, refine messaging, and participate in coordinated advocacy efforts. This is a space for learning, strategy, and practical collaboration.

Join Our Community

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Stories That Matter

Patient Stories With Policy Impact

Patients Rising shares patient stories that shine a light on how healthcare policy works and where it fails. These stories highlight real barriers to care, from coverage denials to access delays, and help ground policy discussions in patient realities.

Read Stories

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Learn Advocacy

Legislative Education & Advocate Development (LEAD)

LEAD is Patients Rising’s advocacy training program for patients and caregivers who want to engage effectively in healthcare policy. The program focuses on policy fundamentals, effective communication, and practical skills for engaging decision-makers.

Explore Education

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Gather & Engage

Advocacy Events

Patients Rising brings advocates together through briefings, trainings, and live events — including the Rise Awards, State of the Patient Summit, and advocacy fly-ins — that connect learning to policy engagement.

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Policy Action

Issues That Shape Patient Care

Explore the healthcare policy issues affecting patient access, affordability, and transparency to see where informed action can make a difference at the state and federal level.

See Priorities

Support Patient Advocacy

Partner With Purpose

Your sponsorship helps fuel the programs that educate, empower, and amplify patient voices nationwide. Join us in shaping a more equitable, accessible healthcare system that listens to the people it serves.

Become a Member

Backed by Trust

Supported by Advocacy
Leaders Nationwide

Patients Rising partners with respected advocacy groups, nonprofits, and healthcare leaders to fight for patient-first policy and amplify real stories that drive change.

Join the Movement

Advocacy Begins
With You

Whether you’re navigating medical bills, battling denials, or pushing for better care, Patients Rising is here to back you up. Join one of the nation’s most active advocacy groups and connect with others who are turning experience into action. It’s free, flexible, and designed for the people we serve.