We are united in this goal:

Building a better healthcare system for all.

Patients Rising’s Patient Advocacy platform empowers you to make a real difference in healthcare. We offer a comprehensive suite of initiatives.

Empowering patients to fight for affordable, accessible healthcare.

Everyone deserves quality, affordable healthcare. We help patients and caregivers become their own advocates.

Healthcare Policy Pop

Biweekly news program covering policies impacting the chronic and rare disease community. Listen and subscribe.

Patients Rising Podcast

Our weekly deep-dive into healthcare policy issues. Listen and subscribe.

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Find Experts, Resources & Services.

We will help you get closer to a solution to your needs, even when that means communicating with a  real person.

PROGRAM HIGHLIGHTS

We The Patients Fly-in

Learn about We The Patients Week in DC.

2024 Info & 2023 Recap

Take Action!

Visit our Advocacy Action Center to review opportunities to make a difference.

Explore Opportunities to Advocate

 

Webinar

Elevating Patient Voices in Ultra Rare Disease: Navigating ICER Reviews

Watch the Recording

State-by-State Actions & Resources

Learn about specific actions you can take to impact policy decisions and find critical advocacy resources.

Learn More

 

Patient Stories

We want to hear what you’ve experienced as a patient. Take a few moments to share your experience and motivations to advocate for patients.

When our elected officials hear from patients, they listen and take action.

Share Your Story

Advocacy Masterclass 2024 Applications are Open

The Advocacy Masterclass, part of our Patient Learning Center, is designed to train patients, caregivers, and citizens in the art of healthcare advocacy.

Learn More & Apply

 

Latest Updates

From Our Patient Advocates

As a patient, I expect to be able to access the health care services I need.

“Medicare refuses to cover my tube feeds. Since my doctor is unable to show proof that I will need my feeding tube forever, they don’t deem it as necessary. Reality is, without my feeding tube I wouldn’t be here today. I need it to survive. The rules and regulations are a one-size-fits-all model for humans who are complex and unique.”

Carolanne Monteleone

Gastroparesis Patient, Pennsylvania

As a patient, health care decisions will remain between me and my doctor.

“It is essential to find a doctor or team who not only listens to and believes you but also respects you, it’s all too easy to get overlooked, ending up with your insurance company dictating your care. I owe my parents everything for taking me to a psychiatrist when I was six or seven and unable to function due to my intrusive thoughts and obsessive tendencies. I can’t imagine how much more painful my childhood might have been otherwise. Access to the right kind of medical care can be not only the difference between life and death, it can also be the difference between misery and a life worth living.”

Hannah Page

Borderline Personality Disorder, New York, NY

Additional Programs and Services in the Patients Rising Network