THE PATIENTS RISING COMMUNITY

You Belong Here

Over 800 patients and caregivers — connected by shared experience, driven by a common belief that their voices belong in the rooms where healthcare decisions are made.

This is your community. No background in healthcare or policy required. Just a willingness to show up.

Advocate, Connect, and Inspire Change
Driven by Patient Voices
WHO WE ARE

A Community Built by Patients, for Patients.

The Patients Rising community is not a mailing list or a membership program. It is a living, active network of patients and caregivers who have decided that their experience — their diagnosis, their denials, their fights, their wins — belongs in the public conversation about healthcare.

We are people who have sat in waiting rooms, appealed denials, navigated formularies, and fought for treatments our doctors recommended. And we have decided that experience makes us experts — in our own care, and in the policies that shape it.

This community is where that expertise finds its voice.

BY THE NUMBERS

A Growing Movement

812
Community Members
28746
Advocates
602
LEAD Graduates
75
Fly-in Attendees
Shape Health Policy
WHERE WE ARE HEADED

From Community to Movement

The Patients Rising community is growing — and so is its reach. Through the Patient Learning Center, our members are gaining the education and tools to engage healthcare not just as patients, but as informed advocates who understand the system they are navigating.

Through the Patient Senate, community members are gaining a formal voice in policy development — testifying, engaging legislators, and making sure the patient perspective is present in every conversation that affects patient care.

We are building toward a future where no patient has to fight alone — and where the collective voice of this community is impossible to ignore.

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Patient Stories

Your Voice Can Change Healthcare

Sharing your healthcare journey can inspire others, shape policy decisions, and drive real change on critical health policy issues. Patients Rising Stories amplify patient and caregiver voices, providing powerful testimonials that advocate for better care. Share your story or explore others today.

Community Benefits

Why Join Our Advocacy Community?

Patients Rising gives you the tools, resources, and connections you need to advocate confidently. Whether you’re starting your journey or deepening your impact, we support every step.

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Connection

Find Your People

You’re not alone. Connect with over 600 patients and caregivers who share your journey. Engage in supportive discussions, join state-specific groups, and find mentorship and friendship as you tackle health policy issues together.

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Education

Advocate With Confidence

Access expert-led courses through the Rising Patients Academy, from self-advocacy basics to mastering health policy. Build your skills, learn your rights, and transform your experiences into impactful advocacy.

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Impact

Drive Real Change

Make your voice count on critical health policy issues. Participate in advocacy campaigns, legislative fly-ins, and events designed to influence meaningful policy reform. Your story matters — let’s make sure it’s heard.

desiree
“My purpose is to enlighten and inspire individuals who have been affected with Multiple Myeloma and/or their caretakers. Second, to educate the community at large. Third, to make legislators aware of how their decisions affect the rare disease community.”
– Desiree
Patient Advocate
miguel
“What inspires me most is the strength and resilience of people who face seemingly insurmountable challenges yet continue to persevere. My own journey, marked by struggles and triumphs, motivates me to be a voice for others navigating the same broken system.”
– Miguel
Patient Advocate
Join Our Community

Together, We’re Stronger

Gain support, resources, and connections with over 600 patients and caregivers actively navigating complex health policy issues. Whether you’re new to patient support or a seasoned advocate, the Patients Rising community provides education, advocacy opportunities, and empowering relationships. Join now to amplify your voice and impact.