Effective Policy Advocacy

Every patient deserves access to the right treatment at the right time.

The most powerful policy advocacy starts with real patients sharing their lived experiences. We are building a national network of patient advocates who are sharing our compelling personal stories across every congressional district.

Every patient deserves access to the right treatment at the right time

A Message from Terry Wilcox

Empowering Patients: Access, Accountability, and Transparency in Healthcare

terry-wilcox-team-gridEvery patient deserves access to the right treatment at the right time.

At Patients Rising, we're advocating for reforms that put patients in control of our healthcare choices. Today, patients face systemic barriers that limit access, increase out-of-pocket costs and ration care.

We believe the most powerful policy advocacy starts with real patients sharing their lived experiences. We are building a national network of patient advocates who are sharing our compelling personal stories across every congressional district.

Our patient voices won't be ignored.

Through targeted campaigns, legislative briefings, and advocacy days at both the federal and state level, we activate our patient network when and where they're needed most—to maximize our policy impact.

Patients Rising is fighting for access, accountability, and transparency in healthcare. We invite you to join us as a corporate partner. Your investment helps drive meaningful reform that truly puts patients first.

Together, we can bring the patient voice to every conversation on healthcare.

Sincerely,
Terry Wilcox
Co-Founder & Chief Mission Officer


Who We Are

A leading 501(c)(4) patient advocacy movement committed to access, accountability, and transparency in healthcare.

The Challenge

Patients face systemic barriers to access that limit our healthcare choices and ration care.

Our Solution

We are bringing real patient voices to state and federal policy conversations on access, affordability, price transparency and 340B accountability.

The Invitation

Join us as a corporate partner to support patients, engage policymakers, and drive meaningful reform.


Our Mission: Put Patients First

Access: Breaking Down Barriers to Care

Every patient deserves access to the right treatment at the right time. We're working to deliver access to new therapies and life-saving treatments. We want to protect the pipeline of progress from anti-patient algorithms, formularies and value frameworks. We are fighting for accelerated FDA approvals, expanded early access programs, and telehealth, ensuring access is never limited by zip code or corporate middlemen.

Affordability: Real Solutions for Rising Out-of-Pocket Costs

Healthcare costs should never be a barrier to life-saving care. We advocate for real solutions that reduce patients' out of pocket costs through expanded HSA flexibility and direct cost-sharing assistance. We categorically reject government price controls, Prescription Drug Affordability Boards, and "value frameworks" that ration care and limit patient access to the right treatment. We support policies that increase domestic medical product manufacturing and a robust pipeline of innovation because innovative breakthroughs save lives, improve quality of life and reduce the overall cost of healthcare.

Accountability & Transparency: Uncovering Where Our Money Goes

Healthcare institutions must put patients first. Accurate and transparent pricing is expected in every industry – except healthcare. We believe that patients have a right to be fully informed by hospitals, PBMs and insurance companies about the real out-of-pocket cost of their care. We advocate for greater accountability in 340B program spending, including a clear definition of charity care, to ensure nonprofit hospitals truly serve their communities. We demand real transparency for pharmacy benefit managers who manipulate drug pricing with hidden rebates.

Control: Restoring the Doctor-Patient Relationship

Healthcare should be about a patient working with their care provider to find the right treatment. The ultimate decision about treatment should be between patients and their doctors. We believe that the true measure of value in healthcare starts with the needs and concerns of patients—not payers, providers, or pharmacy benefit managers. We oppose discriminatory measures like QALYs and affordability boards that devalue human lives. Only patients can decide the goals, priorities and value of treatment.

Financials

Patients Rising 2024 990 Report

Patient Helpline Foundation 2024 990 Report

Our Impact

Advocacy by the Numbers

Patients Rising equips advocates to drive change. Here’s the measurable impact made possible by our patient advocate classes, advocacy training, and engaged community.

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673
Community Members
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28,813
Advocates
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594
Masterclass Graduates
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75
Annual Fly-in Attendees
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Together, We’re Stronger

Gain support, resources, and connections with over 600 patients and caregivers actively navigating complex health policy issues. Whether you’re new to patient support or a seasoned advocate, the Patients Rising community provides education, advocacy opportunities, and empowering relationships. Join now to amplify your voice and impact.