Board of Directors
.
Serving as the co-founder and Chief Mission Officer of Patients Rising, Terry is driven by a
singular conviction: "Empowering patients to advocate through personal storytelling is
essential for crafting comprehensive policy solutions that prioritize the patient experience
in addressing America’s most pressing healthcare access challenges."
Her journey into patient advocacy began with a profound immersion in the deep South,
where she traversed its breadth, capturing patient narratives for an online series she
conceived and produced, titled Understanding Cancer. This experience unveiled the
multitude of healthcare systems and their profound impact on patient access.
Terry found her calling at Vital Options, a cancer advocacy organization, where she servedas the creative director. Here, she met her mentor, Selma Schimmel, whose 30-year battle
with cancer left an indelible mark on Terry's commitment to patient advocacy.
Nearly a decade spent at Vital Options illuminated the potency of creative storytelling indriving change. However, recognizing the imperative of policy and advocacy from the
patient perspective, Terry co-founded Patients Rising in 2015 upon relocating to
Washington, D.C., with her husband.
Now juggling the roles of a part-time caregiver to her stepmom, who battles Alzheimer’s
Disease, and her 88-year-old mother-in-law, Terry embodies the everyday struggles of
Americans interfacing with the healthcare system. She firmly believes that true
transformation in healthcare can only be realized through unified patient voices, echoing
collective stories from every district of every state.
Terry's insights on access, affordability, and transparency issues in healthcare have found resonance in publications such as the Chicago Tribune, The Hill, Boston Globe, Fortune,
Washington Times, American Thinker, and many more.
Residing in Vienna, Virginia with her husband, Jonathan, and their ten-year-old twins,
Jackson and James, Terry finds solace in reading, volunteering, cheering on her children atLittle League games, or orchestrating the next family escapade.
David served in the US Army for a decade, beginning in the 82nd Airborne Division and later 4th Psychological Operations Group. Most recently, David served as the National Security Advisor for a Member of Congress. In addition to leading SOAA, David develops Open-Source Intelligence strategy and policy for the DOD.
Robert Goldberg is Vice President and co-founder of the Center for Medicine in the Public Interest (www.cmpi.org), a non-profit organization that advocates for consumer access to public health innovations. Prior to founding CMPI, Dr. Goldberg was Director of the Manhattan Institute’s Center for Medical Progress and Chairman of its 21st Century FDA Task Force that recommended ways to reduce the time and cost of getting innovative medicines to patients. Many of these recommendations are included in the 21st Century Cures Act. Dr. Goldberg received his PhD in Politics from Brandeis University in 1984.
Jeff is Founder and President of JTO Public Affairs, a healthcare consultancy based in Washington, DC. He services Fortune 500 and trade association clients across the healthcare spectrum. In that capacity, he assists in coalition management, message development and implementation of strategic programs to help his clients meet their legislative goals in DC and beyond. Jeff brings over 20 years’ grassroots/public affairs experience to the table. Previously, he was Managing Director and Partner at SevenTwenty Strategies, a Washington, DC-based public relations & public affairs firm. Additionally, Jeff served as Deputy Vice President of the Pharmaceutical Research & Manufacturers (PhRMA) where he oversaw operations for the Partnership for Prescription Assistance (PPA) the nation’s largest clearinghouse to match patients in need to pharmaceutical assistance programs. He also worked at The Direct Impact Company, the nation’s leading grassroots/public affairs firm where he served as Senior Vice President in charge of some of the company’s most challenging public affairs clients. In the early 90’s, he served as Deputy Director of Field Operations for U.S. Term Limits developing plans and running ballot initiatives to limit the terms of state and federal legislators. Jeff has political/local contacts in every state and congressional district in the United States at both ends of the political spectrum and has run campaigns on a wide array of topics.
Jonathan co-founded Patients Rising and Patients Rising Now and served as Policy Director for both organizations. He is currently the Communication Director at the office of Congressman Darrell Issa. He is a former Adjunct Professor at the University of Southern California’s Annenberg School for Communication and presently a Fellow with USC’s Unruh Institute of Politics. He has been a featured on-air commentator for ABC News, NBC News, Fox News Channel, CNN, several national radio programs and international networks in England, Australia and Japan. His editorial commentaries have been featured in the Wall Street Journal, Investor’s Business Daily, National Review, Sacramento Bee, Los Angeles Daily News, San Francisco Chronicle, Washington Times, Houston Chronicle, Dallas Morning News. He has written extensively for numerous corporate executives, including the Chairman and CEO of Merrill Lynch, the CEO of Coldwell Banker, the Executive Vice President of Wells Fargo Bank and the Deputy President of McDonnell-Douglas. I was also a leading speechwriter for California Governor Pete Wilson. Jonathan is a graduate of the University of Southern California.
