PATIENTS RISING PRINCIPLES

State of the Patient

Healthcare in America fails too many people, especially those who need it most. Too often, decisions about cost, access, and treatment are shaped by systems and institutions rather than the needs of patients.

The healthcare system exists to serve patients.

These ten commitments guide our work to build a system that puts patients first—every time.

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OUR 10 CORE COMMITMENTS

Principles Driving Everything We Do

These commitments guide everything we do—from policy engagement and patient training to fly-ins, storytelling, and the issues we choose to take on.

Together they confront the root problems in healthcare—hidden costs, waste, delays, and power in the wrong places—so patients can access care that is affordable, timely, and effective.

 

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Patients Come First

Judge every policy, payment, and decision by one standard: Does it improve outcomes, access, affordability, and the well-being of patients?

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Clarity Builds Better Care

Patients need to clearly understand healthcare costs, payments, and where the money goes—so everyone involved can make smarter choices that put patients first.

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Fund the Patient

When healthcare dollars follow the patient in planned, routine, or chronic care needs: the system gets efficient and focused on results.

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Access to Medical Innovation

Innovation is moving quickly, and the path from discovery to patient care should move just as fast. Policies should expand access to clinical trials and modernize regulatory processes so effective treatments reach patients sooner. 

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American Leadership in Medical Innovation

America must lead the world in developing and delivering new medical breakthroughs. Strong incentives for research, smart regulation, and policies that reward true innovation keep the U.S. at the forefront so patients here gain access to the world’s best treatments first.

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Secure and Reliable Medical Supply Chains

Patients can't afford shortages or disruptions in drugs, devices, or supplies. Build resilient, domestic-focused supply chains with transparency on sourcing and backups—so critical treatments stay available, prices stay stable, and patients aren't left without what they need during crises.

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Competition and Choice

Open up options so patients can pick providers, plans, and treatments that fit them best. Real competition cuts costs and raises quality. Patients shouldn't be locked into limited networks or forced picks.

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Accountability for Public Programs

Public healthcare programs should be judged by one standard: whether they improve care for patients. That means measuring real outcomes, reducing waste, and ensuring taxpayer dollars lead to better access, affordability, and results.

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Patient Voice in Policy

Healthcare decisions should not be made without input from the people most affected by them. Patients and caregivers offer essential insight that policymakers should actively seek and incorporate.

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Care For the Most Vulnerable.

For the most vulnerable among us—seniors on fixed incomes, people living with chronic illness, families with limited resources, and people with disabilities—healthcare in America is not working. Focus resources where need is greatest: real treatment and support, not endless paperwork.

Why These Principles Matter

Healthcare in America is shaped by complex systems, incentives, and institutions. Too often, those systems make it harder—not easier—for patients and families to get the care they need.

Patients Rising focuses on the root problems driving those failures: hidden costs, delayed access to innovation, fragmented supply chains, limited competition, and policies that prioritize bureaucracy over outcomes.

These ten commitments define the healthcare system we believe patients deserve—one built around transparency, innovation, accountability, and real access to care.

FROM PRINCIPLES TO POLICY

Turning Principles Into Action

These principles are not just ideas—they guide concrete policy and regulatory reforms at both the federal and state level.

Across the country, Patients Rising works with policymakers, healthcare leaders, and patient advocates to advance practical solutions that expand access, improve affordability, strengthen innovation, and ensure accountability.

Each principle outlines the reforms we believe are necessary to build a healthcare system that truly works for patients.

How We Advance These Principles

We advance these principles through five core strategies:
  • Patient-led advocacy at the federal and state level

  • Leadership training for patient advocates through the LEAD program

  • Strategic patient storytelling that brings real experiences to policymakers at the right moment

  • Advocacy fly-ins that connect patients directly with lawmakers

  • Research and reporting on healthcare access and affordability through our website and in the media

Stand With Patients Rising

These principles guide everything we do. Join Patients Rising and help advance policies that improve access, transparency, innovation, and accountability across the healthcare system.

If these principles resonate with you, we invite you to stand with us.