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Patient stories

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Patient Stories

Dec 01, 2025

How I Overturned My Insurance Denial: A Self-Advocacy Guide

Patient Stories

Dec 01, 2025

Fourteen Years of Watching and Waiting

Patient Stories

Dec 01, 2025

Reclaiming My Voice Through Advocacy

Patient Stories

Nov 11, 2025

From Patient to Advocate: My Scleroderma Journey

Patient Stories

Oct 27, 2025

Is CO PDAB reducing my access to medicine?

Patient Stories

Oct 27, 2025

Psoriasis and What Made Me an Advocate

Patient Stories

Oct 27, 2025

Navigating a Rare Disease Led to Finding a Greater Sense of Purpose

Patient Stories

Oct 27, 2025

Prader-Willi-Syndrome: fight for my son, fight for my community

Patient Stories

Oct 24, 2025

Make Yourself Heard and Let Your Representatives Know What Your Life is Like with a rare disease

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