Independent. Transparent. Structured for Impact.
Patients Rising operates through two affiliated nonprofit organizations to advance patient advocacy and education while complying with federal law. Our governance structure ensures accountability, clarity, and independent decision-making.
Our Organizational Structure
Patients Rising is a 501(c)(4) nonprofit advocacy organization.
As a social welfare organization, we engage in public policy advocacy, civic engagement, and legislative education to advance patient-centered healthcare solutions. Our work includes grassroots mobilization, policy campaigns, leadership development, and direct engagement with lawmakers at the state and federal levels.
We exist to ensure patients and caregivers have a strong voice in the policies that shape their healthcare.
IRS Filings & Determination Letter
We make our IRS filings and organizational documentation publicly available below.
Patients Rising is a 501(c)(4) social welfare organization focused on public policy advocacy and civic engagement.
Employer Identification Number (EIN): 61-1860696
IRS Determination Letter: [PDF link]
Annual Filings
Funding Overview
Patients Rising is supported by a diverse mix of funding sources, including individual donors, foundations, corporate members, and event sponsorships.
Financial support enables our work — it does not determine our policy positions. Governance authority rests with our Board of Directors, and program direction is established independently.
We do not promote specific products or therapies. Our focus is on advancing policies that improve patient access, affordability, transparency, accountability, and innovation in healthcare.
Patients Rising is a 501(c)(4) nonprofit advocacy organization. Contributions are not tax-deductible for federal income tax purposes.
Editorial and Policy Independenc
Patients Rising maintains editorial control over all publications, educational materials, and policy positions.
We engage patients, caregivers, clinicians, researchers, and policy experts in shaping our work. Final decisions regarding content and advocacy priorities rest with organizational leadership and are governed by our Board of Directors.
We do not promote individual medicines, devices, or branded products. Our advocacy prioritizes policies that put decision-making power in the hands of patients and caregivers, strengthen access and affordability, increase transparency and accountability, and ensure America remains the world’s leader in developing breakthrough treatments.
