Partners & Coalitions

Leaders Engaged on Alzheimer’s Disease (LEAD Coalition)

Leaders Engaged on Alzheimer’s Disease (LEAD Coalition) is a diverse and growing national coalition of more than 90 member organizations committed to stopping Alzheimer’s disease and other forms of dementia, including vascular disease, Lewy body dementia, and frontotemporal degeneration. The coalition works collaboratively to focus the nation’s attention on accelerating transformational progress in: (1) care and support to enrich the quality of life of those with dementia and their caregivers; (2) detection and diagnosis; and (3) research leading to prevention, effective treatment, and eventual cures.

Patients for Safer Nuclear Medicine Coalition

The Patients For Safer Nuclear Medicine Coalition is comprised of numerous advocacy organizations, across several therapeutic areas, representing thousands of patients across the U.S. We are dedicated to ensuruing the safety of nuclear medicine procedures, which are commonly used to support cardiology, neurology, cancer, and many of types of patients.

 

Patients for Safer Nuclear Medicine logo

California Chronic Care Coalition

The California Chronic Care Coalition (CCCC) is a unique alliance of more than 30 leading consumer health organizations and provider groups that promote the collaborative work of policy makers, industry leaders, providers, and consumers to improve the health of Californians with chronic conditions. We envision a system of care that is accessible, affordable, and of a high-quality that emphasizes prevention, coordinated care, and the patient’s wellness and longevity. Features of the CCCC include the early diagnosis of chronic conditions, access to effective and appropriate treatment and improved chronic care management.

California Chronic Care Coalition

The New England Hemophilia Association

The New England Hemophilia Association (NEHA) is dedicated to improving the quality of life for persons with bleeding disorders and their families through education, support, and advocacy.

New England Hemophilia Association NEHA

Coalition of Texans with Disabilities

Founded in 1978, CTD is the largest and oldest member-driven cross-disability organization in the state. “Cross-disability” refers to all types of disabilities and different functional needs, rather than a particular disability or subset of disabilities. CTD envisions a future where all Texans with all disabilities may work, live, learn, play, and participate fully in the community of their choice.

We focus on governmental advocacy, public awareness activities, and professional disability consulting to make Texas a leader in disability-related public policy and culture.

Coalition of Texans with Disabilities

Collaborating for Care

This coalition focuses on inflammatory bowel disease and issues of diversity, equity & inclusion. We meet approximately each month, share findings and news, and collaborate on projects to benefit patients.

We are a part of the Collaborating for Care coalition, created and administered by Takeda Pharm and includes the: 

 

  • Global Health Living Foundation
  • Color of Crohns and Chronic Illness
  • Patients Rising
  • Crohns and Colitis Foundation
  • American Autoimmune Related Diseases Association
  • Lupus and Allied Diseases Association Inc
  • American Gastroenterological Association

Patients for Prescription Access

Many people are having to make tough decisions about where to spend their money. 

Patients shouldn’t have to choose between paying for the cost of their medications and the rest of life’s necessities. That’s exactly what’s happening to thousands of patients across New England.

Insurance companies are constantly putting patient health at risk by covering less and less of the cost of critical medications.

Now lawmakers are working to change that and Patients for Prescription Access wants to help make sure everyone in the state can afford the medications they need to live a healthy life.

Rare Patient Voice

Rare Patient Voice, LLC connects patients and family caregivers of rare and non-rare diseases with opportunities to share their opinions with companies and researchers by participating in all types of research studies. These include surveys and phone interviews, online bulletin boards, focus groups, clinical trials, and more.