COVID-19
Enrollment is Open at Healthcare.gov, Now Through May 2021
President Biden has signed an executive order to open a Special Enrollment Period in the
Surabhi Dangi-Garimella PhD
March 2, 2021
Patient Empowerment
What Wouldn’t You Do Right Now For Your Child with a Rare Disease?
Founder of the Texas Rare Alliance, Khrystal Davis, has a child, Hunter, and Hunter has
Kate Pecora
March 1, 2021
Advocacy
Lobbying Her State Representatives To Deliver Life Saving Medicines
Kate Across America finds Debbie Healy of Pennsylvania; an advocate who gives us a strong
Kate Pecora
March 1, 2021
Access to Care
Sickle Cell Disease: Has Access Improved for the Black Community?
Do you have a family member with sickle cell disease (SCD)? Have you or a
Surabhi Dangi-Garimella PhD
February 19, 2021
Access to Care
Patients Rising Priorities during Congressional Hearings on the Nomination of Xavier Becerra to Serve as Secretary of Health and Human Services
February 17, 2021 The Honorable Patty Murray Chairman Senate Health, Education, Labor & Pensions Committee
Jim Sliney Jr, Editor
February 19, 2021
Disability
Marriage In the Disabled Community: More Complicated Than You May Think
Imagine you are disabled, and you meet the love of your life. You then decide
Kaitlin A. Kerr
February 16, 2021
Caregiving
A Quick Way to Start Thinking About Your Caregiving Needs
Caregiving for the elderly, especially a parent or loved one can be difficult, time consuming,
Samantha Smith
February 12, 2021
Biologics
Patients Rising Asks: Why Are Rheumatologists Hesitant to Switch Patients to Biosimilars?
Results from an online survey (Medscape.com) of board-certified U.S. rheumatologists found reluctance to switch patients
Surabhi Dangi-Garimella PhD
February 9, 2021
Disease
Tips To Maintain A Healthy Heart And A Healthy Life
It has been easy during the Covid-19 pandemic to forget about preventing heart disease so
Surabhi Dangi-Garimella PhD
February 4, 2021
Mental Health
Know Your Stress: Different Types of Burnout
When we speak about burnout, we’re usually talking about occupational burnout. It’s discussed in relation
Amelia Blackwater
February 3, 2021
Access to Care
Approaching Your Employer About Your Migraine
If you suffer from migraines, then you already know how debilitating they can be. It’s
Jim Sliney Jr.
February 3, 2021
Access to Care
HIV/AIDS Care Remains a Challenge, but the ACA Has Helped
Discovered in 1981, the human immunodeficiency virus (HIV) continues to affect nearly 1.2 million Americans,
Surabhi Dangi-Garimella PhD
February 1, 2021