Voices of Value: BLOG

Tag: spinal muscular atrophy

young SMA patients

Early Definitive Diagnosis of Spinal Muscular Atrophy Could Improve Outcomes

Spinal muscular atrophy (SMA) is a rare genetic condition (affects between 10,000-25,000 kids and adults).

Surabhi Dangi-Garimella PhD September 14, 2021

What Wouldn’t You Do Right Now For Your Child with a Rare Disease?

Founder of the Texas Rare Alliance, Khrystal Davis, has a child, Hunter, and Hunter has

Kate Pecora March 1, 2021

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