Early Definitive Diagnosis of Spinal Muscular Atrophy Could Improve Outcomes Spinal muscular atrophy (SMA) is a rare genetic condition (affects between 10,000-25,000 kids and adults). Read More » Surabhi Dangi-Garimella PhD September 14, 2021
What Wouldn’t You Do Right Now For Your Child with a Rare Disease? Founder of the Texas Rare Alliance, Khrystal Davis, has a child, Hunter, and Hunter has Read More » Kate Pecora March 1, 2021