Ella Balasa

I am a patient advocate, consultant, writer, and a person living with cystic fibrosis. Since being diagnosed at 18 months old I have experienced countless hospitalizations and multiple surgeries leaving visible scars of the battles I’ve faced. Through my public/motivational speaking I advocate for my condition and for the empowerment of patients throughout the healthcare continuum. I am passionate about bringing the value of patient voice to research. Through opportunities working with healthcare organizations and sharing my journey through writing, public speaking, and my art expression, I aim to affect the healthcare landscape by raising awareness of cystic fibrosis, promoting self-advocacy to patients, and valuable insights to organizations.

I hope to also inspire other patients through my advocacy passion to take active roles in their own healthcare so that together we can propel the healthcare industry, researchers, policy makers, and other stakeholders to work tirelessly to advance research and technology to improve the lives of patients everywhere.

Diagnoses I advocate for:  cystic fibrosis and for the development of novel therapies for the treatment of antibiotic resistant infections

Where I’m from: Virginia

My Socials

  • Instagram: @ellabalasaadvocacy
  • LinkedIn: https://www.linkedin.com/in/ella-balasa/
  • Facebook: https://www.facebook.com/ellabalasa.patientadvocate
  • Personal website: www.ellabalasa.com

My Story

My greatest curse, my greatest blessing

My Organizations

US Adult CF Association 

Cystic Fibrosis Foundation  

Ella Balasa

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