Amy Gietzen

I initially wanted to be an Ambassador for PR to invoke change and to help my disease community spread awareness. Having been involved these last few months has opened my eyes to all of the amazing possibilities that can grow from the PR platform. For so many years I have felt like I didn’t fit anywhere! Having found this organization has made me feel like I finally belong! #PatientsRisingFam.

Diagnoses I advocate for: systemic diffuse scleroderma

Where I’m from: Buffalo, NY

My Socials:

My Story:

Staying Alive with Scleroderma

My Organizations:

National Scleroderma Foundation

Amy Gietzen

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