A Guide to Self Advocacy
Why We’re Even Talking About Patient Advocacy
No one understands your health needs more than you. Whether rare, invisible, chronic, or disabled, you need to fight for the best care possible.
This module is designed to inspire you to stand up for yourself in healthcare. If you’re already doing that, then this module also gives you some important tools and tips for managing being chronically ill as well as making researching healthcare stuff easier. We mean to honor you and to validate the hard work you do fighting for what you need, so as always, tell us what else you need to see.
Stories Have Power
Tools for Empowerment
Managing Chronic illness:
A guide to organizing your care
Living with or caring for someone with a chronic condition can feel like a full time job. In this webinar, our panel of patient care experts offer resources and tools for taking control of the chaos that can come with chronic disease. Managing Chronic Illness Webinar
This webinar has 4 sections:
- Tools & Materials featuring Carolanne Monteleone– Start time 3:30
- Information About Yourself featuring Debbie Bitticks – Start time 13:43
- Activating Your Healthcare Team (full panel) – Start time 28:40
- Finances featuring Whitney Morrison of LegalZoom – Start time 39:15
Listen to our Podcast Episodes about Self Advocacy
Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast.
EPISODE SUMMARY: Many patients with chronic illnesses have had their treatments delayed or postponed as healthcare shifts its focus to COVID-19. Lifesaving procedures for the chronically ill have been put on the back burner.
How does the healthcare system prioritize who is worth immediate care, and what does that mean for the patients put at the end of the line?
On this episode, we explore these moral dilemmas in healthcare with the help of Dr. Camosy, a professor of bioethics. And Kate speaks with Jennifer McNary, a mother fighting against ICER’s pricing roadblocks in order to get her sons’ access to treatment for Duchenne Muscular Dystrophy.