Making Health Insurance Work for You

Making Health Insurance Work for You

Tools for Empowerment

Listen to our Podcast Episodes about Getting Treatments Covered

Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast.

EPISODE SUMMARY:

Rare Disease Day is February 28. New and exciting medical innovations and drug therapies for rare disease abound, but accessing those treatments is another challenge. Discriminatory healthcare metrics like quality-adjusted-life-years (QALYs) devalue rare disease patient lives, signaling that a patient’s life isn’t worth covering treatments and therapies. 

Dr. Bill Smith explains how QALYs are used and how it prevents patients from getting the life-saving care they need. Plus, Patients Rising Field Correspondent Kate speaks with Marni Cartelli, a rare disease patient living with complex regional pain syndrome, and Patient Correspondent Lillian Isabella celebrates Rare Disease Day by sharing her story of being diagnosed with PKU. 

Honest, helpful discussions about chronic illness issues.

HOSTS:

Terry Wilcox
Patients Rising Executive Director

Robert “Dr. Bob” Goldberg
Center for Medicine in the Public Interest, Co-Founder & Vice President

SUBSCRIBE

You’ll receive updates about new resources, patient stories and insights, advocacy work, and alerts about patient-support events.

The latest about patient advocacy

Join our Email List

Get notified about new stories and resources to empower patients and caregivers.