Caregiver Resource Hub
empowering family Caregivers with helpful resources
Stories Have Power
Across the nation, people are sharing their healthcare stories to raise awareness and affect change. Lend your voice to the movement and help bring about change in healthcare.
Tools for Empowerment
Geriatric Care
Pediatric Care
Listen to our Podcast Episodes about caregiving
Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast.
EPISODE SUMMARY:
COVID-19 continues to put the most vulnerable at risk, including the elderly and those with chronic illnesses. At its peak, it filled up hospitals and forced those seeking non-COVID care to postpone critical appointments. To protect patients and caregivers from the next pandemic, the government needs to adapt, change, and prepare.
Former FDA Commissioner Dr. Scott Gottlieb shares where the government response failed, how to address pandemic preparedness through a national security lens, and ways to bolster the research and development of therapeutics. Plus, field correspondent Kate brings us part two of her conversation with Dorothea Lantz on her son’s diagnosis of Prader-Willi Syndrome and the impact of growth hormones on his life.
Honest, helpful discussions about chronic illness issues.
HOSTS:
Terry Wilcox
Patients Rising Executive Director
Robert “Dr. Bob” Goldberg
Center for Medicine in the Public Interest, Co-Founder & Vice President
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EPISODE SUMMARY:
When a chronic condition prevents you from working, you might find yourself filling out a disability claim. But what happens when it’s denied? And how can you fight to receive your health benefits?
All of this ties back to ERISA, the Employee Retirement Income Security Act. This week’s guest, ERISA lawyer Glenn Kantor, helps us understand how ERISA impacts patients on employer-sponsored health plans.
Plus, a look inside the fight for marriage equality within the disability community. Kaitlin Kerr shares her story and explains how patients with disabilities could lose their Social Security Disability Insurance upon entering an interabled marriage.
And Dr. Paul Langley kicks off a new segment, The Last Word, where he breaks down ICER’s flawed pricing recommendations for high cholesterol treatments.
Infographics
HOW DO U.S. STATES RANK IN CAREGIVER SUPPORT POLICIES?
According to a 2020 report, an estimated 22-26 million adults provide unpaid care to a family member or friend, helping with daily activities, personal and medical care, as well as daily chores
AN INFOGRAPHIC FOR FINDING PATIENT TRANSPORTATION
Medical transportation tips for patients and caregivers as well as types of medical transportation including emergency and non emergency medical transportation.
