Terrified, isolated, exhausted, confused-–these words barely scratch the surface of the emotions someone feels when
An autoimmune, neuromuscular condition that weakens skeletal muscles that regulate physical movement as well as
Founder of the Texas Rare Alliance, Khrystal Davis, has a child, Hunter, and Hunter has
Billy Ellsworth is 18. He just graduated from high school, even walked across the stage.
I’m a rare disease patient. Over the years, I’ve learned how to live with it,
Rare conditions are often misdiagnosed as other health problems. Undoubtedly, rare or orphan diseases are
The Headline: ICER Rare Disease report justifies cutting care for patients living with rare diseases.
In New York City, you need focus. You need to navigate street traffic, shoot glances
For ten years, I’ve been very sick with an extremely rare illness, Stiff Person Syndrome.
Patients Living with a Rare Disease Face Unique Challenges What does it mean to live
The famed rabbit of the tale Alice in Wonderland, egged on Alice,” Eat me and
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