Voices of Value: BLOG

Author: Cheyanne Perry

Genetic testing

“Probably Genetic” is Making Genetic Testing More Accessible to Rare Disease Patients and Families

Terrified, isolated, exhausted, confused-–these words barely scratch the surface of the emotions someone feels when

Cheyanne Perry September 30, 2022

digestive tract paralysis

Coping with the Fear of Digestive Tract Paralysis

At the young age of thirteen, I had already mastered the art of hospital waiting

Cheyanne Perry August 15, 2019

You’ll receive updates about new resources, patient stories and insights, advocacy work, and alerts about patient-support events.