Patients Rising has submitted formal letters to New York State leaders raising concerns about the proposed expansion of the federal 340B Drug Pricing Program and urging a more transparent, patient-focused approach.
The letters were sent ahead of this week’s Senate Finance Committee meeting and ongoing state budget negotiations, where 340B expansion is under active consideration.
At the center of our message is a simple principle: patients should know when a program is supposed to help them—and whether it actually does.
Patients Rising submitted two letters:
Both letters highlight the same core concern: New York is being asked to expand a program that lacks basic transparency for patients.
The 340B Drug Pricing Program was created to help hospitals and clinics better serve patients by purchasing medicines at discounted prices.
But today, patients are often left out of the equation.
As outlined in our letters:
In New York alone, hospitals have established nearly 1,700 contract pharmacy arrangements, with a significant portion located outside the state or in communities that are not underserved
At the same time, New York hospitals participating in 340B provide, on average, less charity care than hospitals nationwide
The 340B program has grown rapidly in recent years, now totaling more than $80 billion in discounted drug purchases annually
Despite that growth, there are still no clear answers to basic questions patients are asking:
Without transparency, those questions remain unanswered.
Patients Rising is urging New York leaders to take a step back.
Before expanding the program through legislation or the state budget, policymakers should:
Expanding the program without these safeguards risks reinforcing a system where financial benefits are captured by hospitals, pharmacy benefit managers, and large pharmacy chains—while patients see little direct relief.
We also made clear that the state budget is not the right place to make major healthcare policy changes of this scale.
The 340B program is complex and far-reaching. It requires thoughtful debate, stakeholder engagement, and a clear understanding of patient impact—not rushed inclusion in a budget negotiation.
These letters build on our ongoing work to bring transparency to the 340B program in New York:
We will continue to elevate patient voices and push for policies that ensure healthcare programs deliver real, measurable benefits to the people they are intended to serve.
Patients deserve to know.
If a program is built to help patients, it should be able to show it to the patients it's helping.