Please complete the survey below to participate in the People of Color with IBD project.


This survey is an attempt to better understand the lived experiences of People of Color with Inflammatory Bowel Disease (IBD). Please answer the items to the best of your ability. At the end of the survey, you will have the opportunity to share in your own words with us. We are counting on you to tell us the things the healthcare industry doesn’t hear. Then the partners on this project can work hard to find or build resources that will make your experience with IBD better.

Privacy

We ask for some personal information here but it does not amount to “Personally Identifiable Information”. Other than your email, we can’t and won’t use this information to do anything other than perform this project. And because we do not ask your name, address, phone or the like, we cannot identify you.

How we decided what to ask

This survey was created by several organizations including Patients Rising, IBD Moms, Color of Crohns and Chronic Illness, Crohns and Colitis Young Adults Network, Healthline and several IBD stakeholders from communities of Color. We also acknowledge that YOU are the expert in your own health experience, which is why we put an open-ended text box at the end of the survey where you can tell us what you think we need to hear.

If you have any problems please contact Jim Sliney Jr at jsliney@patientsrising.org

Ensuring Data is Valid

A symptom of online surveys these days is the presence of “bot programs” that fill out the surveys usually hoping to get access to gift cards or incentives. This is a serious challenge for researchers. To make sure the data we collect can be trusted we do ask some peculiar questions. Please answer everything to the best of your ability.

 

 

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